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Living with IIH

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IIH and sleep apnea

Sophiasmom

4468

Thu Jun 28, 2012 9:53 pm
Sophiasmom

new surgical treatment for IIH?

Sophiasmom

1334

Wed Jun 27, 2012 7:39 pm
sinister416

Ear pain and nausea/queasy feeling

Lisanne

7193

Mon Jun 25, 2012 5:16 am
Sophiasmom

Disappointing visit to neurosurgeon

dpope

1850

Sat Jun 23, 2012 1:44 am
Wylee

Should I be panicked?

medmisfit

1398

Wed Jun 20, 2012 4:10 pm
medmisfit

I am not fine!!

Tired of you look fine!!

Boxer601

1682

Wed Jun 20, 2012 5:12 am
Wylee

Were you warned against food when you were diagnosed?

Various vitamins that are bad for IIH

Krystyn<3

3785

Wed Jun 20, 2012 5:10 am
Sophiasmom

I got a brand new ...LP Shunt

LP Shunt

Krystyn<3

1507

Mon Jun 18, 2012 2:14 pm
VDubs

You look ok to me....

Well why don't you step inside my brain!!!

RKOPrincess

1372

Mon Jun 18, 2012 2:02 pm
VDubs

Low Pressure Headache

huggy

2889

Mon Jun 18, 2012 1:13 pm
VDubs

Lumbar Puncture - how painful

bonbon

4852

Wed Jun 13, 2012 10:29 pm
Wylee

Sorry

Jewls27

1512

Sat Jun 09, 2012 3:13 pm
Jewls27

Thinking about surgery, how do I talk to my drs about it?

peanutbutter

1182

Thu Jun 07, 2012 4:27 am
Wylee

Bad week :(

godsrosebud

1574

Wed Jun 06, 2012 5:36 pm
godsrosebud

system sucks

bonbon

1447

Thu May 31, 2012 6:49 pm
medmisfit

Disability

Anyone disabled because of IIH?

claudiasu

1865

Thu May 31, 2012 5:13 pm
claudiasu

Ability to work

Member Survey

LSam

5889

Sat May 19, 2012 3:03 pm
Heidi

Does anyone have vibrating face or eye nerves?

LSam

3098

Sat May 19, 2012 1:41 pm
Boxer601

That dirty word physicians love: Excercise

IIH and Excercise

Krystyn<3

4148

Fri May 18, 2012 7:55 pm
Boxer601

bad times

ashley gray

1321

Fri May 18, 2012 3:35 pm
sinister416

UPDATE 2 weeks in

Jewls27

2362

Sun May 13, 2012 3:12 am
Sophiasmom

IIH and RHS makes me feel stupid

Wylee

1396

Sat May 12, 2012 8:00 am
Krystyn<3

Over heating

Discussion IIH and Weather

bonbon

4125

Sat May 12, 2012 7:12 am
Sophiasmom

weird sensation

Jewls27

1701

Wed May 09, 2012 9:00 pm
medmisfit

Diamox and Dairy

Jewls27

3083

Sun May 06, 2012 8:25 am
Jewls27

May I Please Just Whine For A Bit?

Antigone

1210

Tue May 01, 2012 4:13 pm
Heidi

Sensory problems?

Sophiasmom

1570

Tue May 01, 2012 3:08 am
Wylee

Trying to give meds a chance

dpope

1353

Tue May 01, 2012 2:44 am
Wylee

Limbo hell

VP Shunt surgery on hold

mhaimowitz

3495

Sat Apr 28, 2012 6:12 pm
mhaimowitz

Feeling alone.

Tired of being sick and sick of being tired. Need a rant!

lillith98

1649

Mon Apr 16, 2012 10:17 pm
Liz81

Out of Control

Pain, doctors, and an update on where I am right now

Happening54Child

2889

Tue Apr 10, 2012 7:59 pm
Heidi

Something For Everyone.

hunterofangels

1420

Mon Apr 09, 2012 3:17 pm
medmisfit

Lumbar Puncture Complications

lillith98

5588

Sat Apr 07, 2012 1:33 am
medmisfit

Pulsations..

nikinushan

1452

Fri Mar 09, 2012 5:52 pm
Wylee

Having an angiogram

mhaimowitz

1217

Fri Feb 24, 2012 12:58 am
mhaimowitz

What are the symptoms of IIH?

Informational Link

Heidi

1337

Sun Feb 19, 2012 9:53 pm
Heidi

Not Sure What to Do Next

Neurosurgeon has doubts about shunt surgery

mhaimowitz

2746

Thu Feb 02, 2012 9:59 pm
volgirl98

Had another Lp done and found out something else :(

I need a Hug!

ksefcovic05

1212

Mon Jan 30, 2012 6:26 pm
BananasMom

Eye twitch and stabbing in my brain!

Member discussion

Savemybrain

3074

Sun Jan 29, 2012 12:00 am
Savemybrain

CT Scan

Fortunes

LSam

1364

Fri Jan 27, 2012 6:11 pm
BananasMom

Shunt v. fenestration of the optic nerve

Member discussion

plangnau

1104

Thu Jan 26, 2012 5:47 pm
plangnau

2nd Opinion Neuro Surgeon Visit

I have had headaches before and worse after surgery

ksefcovic05

1257

Tue Jan 24, 2012 7:47 pm
ksefcovic05

Alcohol

mel_icu

3134

Tue Jan 03, 2012 2:46 pm
Guest

vent, venting, venty!!

my ranting vent

Savemybrain

1297

Tue Dec 20, 2011 3:27 pm
LSam

Medical Bills

How the heck do you pay for it all?

painoh

1304

Tue Dec 20, 2011 2:50 pm
Wylee

Pregnancy

morrise

1874

Sun Nov 20, 2011 10:36 pm
Heidi

Something wrong with my shunt

mcollins

5811

Thu Nov 17, 2011 3:23 pm
Heidi

Blah!

hunterofangels

1438

Tue Nov 08, 2011 6:40 pm
medmisfit

help! They are trying to stop my benefits

jojomcart

1577

Sat Oct 29, 2011 1:56 am
Guest

PLEASE! tell me i am not the only one......

Savemybrain

1649

Fri Oct 14, 2011 7:34 pm
medmisfit

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