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Women and IIH

Share your IIH story with other members and let them get to know you and your experiences of this condition.
3042107Introduction/que...
Sat Nov 10, 2018 11:57 am
medmisfit View latest post
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 Men and IIH

Introduce yourself and share your experience with other males who have IIH.

20246Marine iih back...
Wed Dec 27, 2017 5:33 pm
medmisfit View latest post
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Teens and IIH 16-19



210im almost 20 and...
Sat Sep 13, 2014 11:24 am
BananasMom View latest post
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Pregnancy and Motherhood

510Pregnancy with a...
Fri Sep 15, 2017 7:33 pm
medmisfit View latest post
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Alternative Therapy

This forum is about alternative therapies that you have used and found help or to talk about any that you have seen but haven't tried and to ask other members if they have found them helpful
1799Cranial Sacral T...
Wed Aug 24, 2016 5:49 pm
medmisfit View latest post
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IIH Helpful Coping Methods

IIH Helpful Coping Methods

Suggestions and advice on various subjects to do with IIH

Feel free to suggest methods that have helped you to cope with daily life with IIH, from housework to education. We all have found ways to adapt to everyday life, share these with other members.


2780Life with IIH
Thu Jan 02, 2020 4:04 pm
imme View latest post
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Group Huddle

Having a bad day? Need a shoulder? Do you just have a specific question to ask?
This forum will allow you to share your feelings and questions with sympathetic members, who understand and can share an experience.

3322322new skin sensor ...
Sun Apr 28, 2019 6:34 pm
Sophiasmom View latest post
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IIH Successes

IIH Successes

We want you to tell us about successes you have had since being diagnosed with IIH. They could be anything from going back to work, to telling us if the coping methods and guide sheets we have, have worked for you, and if since treatment things have improved. We want to show that having IIH isn't all doom and gloom, and that your successes will give hope to those newly diagnosed and to those who are struggling. Every success you have will help someone else to achieve the same success based on your experience. So please post.


22161Ashley's Story...
Sun Sep 24, 2017 9:28 pm
swilborn View latest post
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Useful Guides and Printouts

Useful Guides and Printouts

Here you can find handy guides that we hope you will find useful in having a better life with your IIH, they are methods that we have used that have helped us to have as normal a life as possible.

Our Information and Education booklets are


Information booklets from Partner Organisations
The Brain and Spine Foundation
Rare Disease UK

3232Quality of Life ...
Wed May 09, 2018 4:45 pm
medmisfit View latest post
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Benefit Resources



1011Benefits and Wor...
Thu May 16, 2013 8:48 pm
Heidi View latest post
The I Have IIH Foundation -   Empty
 Announcement & Sticky  Replies  Author  Views  Last Posts 
No new postsThe I Have IIH Foundation -   Empty
Global announcement:

BUY A WRISTBAND OR LAPEL PIN


Merchandise Annoincement
 
0Heidi4255Tue Feb 18, 2014 10:18 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty
Programmable shunts being affected by the magnets in tablet computers.
 
1sinister4164807Thu Nov 14, 2013 5:36 pm
Wylee View latest post
No new postsThe I Have IIH Foundation -   Empty
Admin Announcement
 
18Heidi5891Thu Sep 19, 2013 11:55 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty
IMPORTANT SURVEYS
 
0Heidi5364Fri Nov 02, 2012 8:42 pm
Heidi View latest post
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Partner Organisation
 
0Heidi3726Mon Mar 19, 2012 10:57 pm
Heidi View latest post
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Urgent Advice
 
1Heidi3385Tue Apr 05, 2011 10:29 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty 0Heidi1800Wed Feb 25, 2009 5:16 pm
Heidi View latest post
 Topics  Replies  Author  Views  Last Posts 
No new postsThe I Have IIH Foundation -   Empty 28Aoitoribento1070Sun Sep 02, 2018 3:51 am
Sophiasmom View latest post
No new postsThe I Have IIH Foundation -   Empty 3Tlthomas95881Thu May 17, 2018 9:01 pm
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No new postsThe I Have IIH Foundation -   Empty 4KKing1090Tue Feb 06, 2018 2:24 pm
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No new postsThe I Have IIH Foundation -   Empty 3JessG261172Mon Sep 11, 2017 6:03 pm
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No new postsThe I Have IIH Foundation -   Empty 2JuliaSuzanne965Mon Jul 31, 2017 5:12 pm
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No new postsThe I Have IIH Foundation -   Empty 1Sammy-ann933Tue May 02, 2017 2:28 pm
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No new postsThe I Have IIH Foundation -   Empty 13Spookess1387Mon Feb 13, 2017 4:38 pm
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No new postsThe I Have IIH Foundation -   Empty 26Kaitlinms1633Thu Dec 01, 2016 5:19 am
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No new postsThe I Have IIH Foundation -   Empty 1Kaitlinms982Mon Nov 14, 2016 6:42 am
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High Pressure Headaches and Menstruation
 
17missjean223854Wed Sep 21, 2016 3:55 am
Nami81 View latest post
No new postsThe I Have IIH Foundation -   Empty 3RosieB2090Sat Sep 19, 2015 5:41 am
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No new postsThe I Have IIH Foundation -   Empty 4emma;)3531Fri Jan 31, 2014 11:53 pm
emma;) View latest post
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Looking for pain management options
 
2medmisfit2004Tue Jun 28, 2011 8:12 pm
medmisfit View latest post
No new postsThe I Have IIH Foundation -   Empty
[sub]IIH Signs and Symptoms[/sub]
 
0Heidi2185Wed May 25, 2011 6:20 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty
Have any of you had issues w/ digestion?
 
2medmisfit2723Thu May 19, 2011 2:58 pm
medmisfit View latest post
No new postsThe I Have IIH Foundation -   Empty
Looking for treatment options
 
2medmisfit2056Fri Apr 22, 2011 6:19 pm
medmisfit View latest post
No new postsThe I Have IIH Foundation -   Empty
member discussion
 
3missjean221926Sun Apr 10, 2011 12:23 am
Heidi View latest post
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Group Question
 
5missjean229427Wed Apr 06, 2011 12:38 pm
seasprite View latest post
No new postsThe I Have IIH Foundation -   Empty
Group discussion
 
3painoh2442Mon Apr 04, 2011 3:32 am
ChrisC View latest post
No new postsThe I Have IIH Foundation -   Empty 7Guest2327Tue Mar 22, 2011 10:19 pm
sarthur8 View latest post
No new postsThe I Have IIH Foundation -   Empty
Shunt migraines
 
9missy83192571Thu Nov 04, 2010 11:31 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty
Surgery Procedure
 
3missjean222028Mon Jun 28, 2010 11:01 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty 10traceyb2604Sat Jun 19, 2010 12:50 pm
geri View latest post
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IIH
 
5linsey2495Sat Jun 05, 2010 11:36 am
max View latest post
No new postsThe I Have IIH Foundation -   Empty 6traceyb2700Wed May 12, 2010 6:28 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty 8IdaSerafiina5096Tue May 11, 2010 7:22 pm
IdaSerafiina View latest post
No new postsThe I Have IIH Foundation -   Empty 6traceyb2255Sat May 08, 2010 2:35 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty 7traceyb4580Wed Apr 28, 2010 6:48 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty 6Guest2260Fri Apr 16, 2010 9:35 pm
missjean22 View latest post
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Updates
 
4Heidi2082Wed Mar 31, 2010 4:07 pm
Christy Savage View latest post
No new postsThe I Have IIH Foundation -   Empty 2missjean222264Tue Mar 23, 2010 4:11 pm
Heidi View latest post
No new postsThe I Have IIH Foundation -   Empty 8Guest4167Tue Mar 16, 2010 5:50 am
Guest View latest post
No new postsThe I Have IIH Foundation -   Empty 5Lacy2232Sat Mar 14, 2009 4:10 pm
Heidi View latest post
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DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
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