| Topics | Posts | Last Posts |
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| Share your IIH story with other members and let them get to know you and your experiences of this condition.
| 304 | 2107 | Introduction/que... Sat Nov 10, 2018 11:57 am medmisfit |
| Introduce yourself and share your experience with other males who have IIH.
| 20 | 246 | Marine iih back... Wed Dec 27, 2017 5:33 pm medmisfit |
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| 2 | 10 | im almost 20 and... Sat Sep 13, 2014 11:24 am BananasMom |
| | 5 | 10 | Pregnancy with a... Fri Sep 15, 2017 7:33 pm medmisfit |
| This forum is about alternative therapies that you have used and found help or to talk about any that you have seen but haven't tried and to ask other members if they have found them helpful
| 17 | 99 | Cranial Sacral T... Wed Aug 24, 2016 5:49 pm medmisfit |
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Suggestions and advice on various subjects to do with IIH
Feel free to suggest methods that have helped you to cope with daily life with IIH, from housework to education. We all have found ways to adapt to everyday life, share these with other members.
| 27 | 80 | Life with IIH Thu Jan 02, 2020 4:04 pm imme |
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Having a bad day? Need a shoulder? Do you just have a specific question to ask?
This forum will allow you to share your feelings and questions with sympathetic members, who understand and can share an experience.
| 332 | 2322 | new skin sensor ... Sun Apr 28, 2019 6:34 pm Sophiasmom |
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We want you to tell us about successes you have had since being diagnosed with IIH. They could be anything from going back to work, to telling us if the coping methods and guide sheets we have, have worked for you, and if since treatment things have improved. We want to show that having IIH isn't all doom and gloom, and that your successes will give hope to those newly diagnosed and to those who are struggling. Every success you have will help someone else to achieve the same success based on your experience. So please post.
| 22 | 161 | Ashley's Story... Sun Sep 24, 2017 9:28 pm swilborn |
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Here you can find handy guides that we hope you will find useful in having a better life with your IIH, they are methods that we have used that have helped us to have as normal a life as possible.
Our Information and Education booklets are
Information booklets from Partner Organisations
The Brain and Spine Foundation
Rare Disease UK
| 32 | 32 | Quality of Life ... Wed May 09, 2018 4:45 pm medmisfit |
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| 10 | 11 | Benefits and Wor... Thu May 16, 2013 8:48 pm Heidi |
Announcement & Sticky | Replies | Author | Views | Last Posts |
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| | Merchandise Annoincement | 0 | Heidi | 4255 | Tue Feb 18, 2014 10:18 pm Heidi |
| | Programmable shunts being affected by the magnets in tablet computers. | 1 | sinister416 | 4807 | Thu Nov 14, 2013 5:36 pm Wylee |
| | Admin Announcement | 18 | Heidi | 5891 | Thu Sep 19, 2013 11:55 pm Heidi |
| | IMPORTANT SURVEYS | 0 | Heidi | 5364 | Fri Nov 02, 2012 8:42 pm Heidi |
| | Partner Organisation | 0 | Heidi | 3726 | Mon Mar 19, 2012 10:57 pm Heidi |
| | Urgent Advice | 1 | Heidi | 3385 | Tue Apr 05, 2011 10:29 pm Heidi |
| | | 0 | Heidi | 1800 | Wed Feb 25, 2009 5:16 pm Heidi |
Topics | Replies | Author | Views | Last Posts |
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| | | 28 | Aoitoribento | 1070 | Sun Sep 02, 2018 3:51 am Sophiasmom |
| | | 3 | Tlthomas95 | 881 | Thu May 17, 2018 9:01 pm medmisfit |
| | | 4 | KKing | 1090 | Tue Feb 06, 2018 2:24 pm medmisfit |
| | | 3 | JessG26 | 1172 | Mon Sep 11, 2017 6:03 pm medmisfit |
| | | 2 | JuliaSuzanne | 965 | Mon Jul 31, 2017 5:12 pm medmisfit |
| | | 1 | Sammy-ann | 933 | Tue May 02, 2017 2:28 pm medmisfit |
| | | 13 | Spookess | 1387 | Mon Feb 13, 2017 4:38 pm medmisfit |
| | | 26 | Kaitlinms | 1633 | Thu Dec 01, 2016 5:19 am Sophiasmom |
| | | 1 | Kaitlinms | 982 | Mon Nov 14, 2016 6:42 am Sophiasmom |
| | High Pressure Headaches and Menstruation | 17 | missjean22 | 3854 | Wed Sep 21, 2016 3:55 am Nami81 |
| | | 3 | RosieB | 2090 | Sat Sep 19, 2015 5:41 am Sophiasmom |
| | | 4 | emma;) | 3531 | Fri Jan 31, 2014 11:53 pm emma;) |
| | Looking for pain management options | 2 | medmisfit | 2004 | Tue Jun 28, 2011 8:12 pm medmisfit |
| | [sub]IIH Signs and Symptoms[/sub] | 0 | Heidi | 2185 | Wed May 25, 2011 6:20 pm Heidi |
| | Have any of you had issues w/ digestion? | 2 | medmisfit | 2723 | Thu May 19, 2011 2:58 pm medmisfit |
| | Looking for treatment options | 2 | medmisfit | 2056 | Fri Apr 22, 2011 6:19 pm medmisfit |
| | member discussion | 3 | missjean22 | 1926 | Sun Apr 10, 2011 12:23 am Heidi |
| | Group Question | 5 | missjean22 | 9427 | Wed Apr 06, 2011 12:38 pm seasprite |
| | Group discussion | 3 | painoh | 2442 | Mon Apr 04, 2011 3:32 am ChrisC |
| | | 7 | Guest | 2327 | Tue Mar 22, 2011 10:19 pm sarthur8 |
| | Shunt migraines | 9 | missy8319 | 2571 | Thu Nov 04, 2010 11:31 pm Heidi |
| | Surgery Procedure | 3 | missjean22 | 2028 | Mon Jun 28, 2010 11:01 pm Heidi |
| | | 10 | traceyb | 2604 | Sat Jun 19, 2010 12:50 pm geri |
| | IIH | 5 | linsey | 2495 | Sat Jun 05, 2010 11:36 am max |
| | | 6 | traceyb | 2700 | Wed May 12, 2010 6:28 pm Heidi |
| | | 8 | IdaSerafiina | 5096 | Tue May 11, 2010 7:22 pm IdaSerafiina |
| | | 6 | traceyb | 2255 | Sat May 08, 2010 2:35 pm Heidi |
| | | 7 | traceyb | 4580 | Wed Apr 28, 2010 6:48 pm Heidi |
| | | 6 | Guest | 2260 | Fri Apr 16, 2010 9:35 pm missjean22 |
| | Updates | 4 | Heidi | 2082 | Wed Mar 31, 2010 4:07 pm Christy Savage |
| | | 2 | missjean22 | 2264 | Tue Mar 23, 2010 4:11 pm Heidi |
| | | 8 | Guest | 4167 | Tue Mar 16, 2010 5:50 am Guest |
| | | 5 | Lacy | 2232 | Sat Mar 14, 2009 4:10 pm Heidi |
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