Hi Everybody, :hello:

As you know we have always intended for I Have IIH to be an International Not for Profit IIH Patient Organisation that helps ALL sufferers everywhere to have a better life with IIH. We want to help ALL of YOU to have a better life with this disease and to be given the necessary information you need to do just that, from the minute you are diagnosed.

In the three years that we have been operating we have managed to reach over 500 of you, on here, Twitter and Facebook, partner and collaborate with no less than six Organisations, produce informative booklets for you to read, download and print, and become the Support Organisation working as part of the IH Brain Pain Team.

We have been, and continue to be a self funded site, and now we want to make our booklets available everywhere in a physical form. To do this we need your help to distribute multilingual leaflets and posters to all necessary avenues i.e.; Hospitals, Doctors Surgeries and Opthalmologists for the benefit of newly diagnosed patients, and sufferers in general.

However, this is going to take money, so this is where you come in. We would like you to think of ways you could help us to raise funds to be able to provide the information that you need. We would also like you to help us raise these funds and help us reach our International Not for Profit status so that we can help everyone with IIH where there is very little information.

We hope in time and with your help to be able to then move on to the next stage of developing an International database of medical professionals specialising in IIH made accessible to members in order to locate an IIH Specialist in their respective areas and countries.

We have recognised all the areas that globally IIH sufferers are in need, but we can only achieve them one at a time with your much needed help.

Will you help us?


The Admin Team