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Global announcement:

BUY A WRISTBAND OR LAPEL PIN


Merchandise Annoincement
 
0Heidi3657on Tue Feb 18, 2014 10:18 pm
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Programmable shunts being affected by the magnets in tablet computers.
 
1sinister4164268on Thu Nov 14, 2013 5:36 pm
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Admin Announcement
 
18Heidi5337on Thu Sep 19, 2013 11:55 pm
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IMPORTANT SURVEYS
 
0Heidi4867on Fri Nov 02, 2012 8:42 pm
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Partner Organisation
 
0Heidi3271on Mon Mar 19, 2012 10:57 pm
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Urgent Advice
 
1Heidi2980on Tue Apr 05, 2011 10:29 pm
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Please Get Involved Announcement
 
2medmisfit1714on Fri Feb 15, 2013 9:21 pm
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No new posts 0sinister4161444on Wed Apr 18, 2012 3:19 pm
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Member discussion
 
0Heidi1342on Tue Oct 11, 2011 2:41 pm
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Announcement:

Volunteers Needed


Admin Announcement
 
0Heidi1818on Sat Jun 04, 2011 10:30 pm
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Admin Announcement
 
0Heidi1628on Fri Mar 02, 2012 10:42 pm
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Partner Organisation Request
 
1Heidi2475on Thu Feb 16, 2012 4:10 pm
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We're asking members to describe what they like to do best to fund raise
 
0sinister4161347on Tue Feb 14, 2012 5:31 pm
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Help Raise Research Funds for the IH Research Foundation
 
0Heidi2096on Tue May 18, 2010 9:21 pm
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 Topics  Replies  Author  Views  Last Posts 
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Show Your Rare
 
5medmisfit1090on Fri Mar 02, 2018 5:33 am
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New member from USA, sharing my story.
 
2es1101771967on Wed Apr 26, 2017 4:02 pm
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IIH Awareness Month
 
0Heidi1059on Sun Sep 04, 2016 7:33 pm
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Patient Voice
 
3medmisfit1392on Mon Mar 21, 2016 7:37 pm
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Information
 
0Heidi1718on Sat Apr 11, 2015 7:39 pm
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Get Involved
 
0Heidi1157on Tue Feb 10, 2015 5:02 pm
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Partner Campaign
 
0Heidi1635on Wed Mar 12, 2014 4:32 pm
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No new posts 0medmisfit1067on Wed Feb 26, 2014 4:33 pm
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Rare Disease Day Awareness Campaign
 
0Heidi1657on Fri Feb 07, 2014 5:54 pm
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Rare Disease UK Partner
 
0Heidi1089on Tue Jul 02, 2013 8:05 pm
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Admin Announcement
 
0Heidi1309on Fri May 10, 2013 5:49 pm
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No new posts 0Laura2555on Tue Feb 26, 2013 5:25 pm
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Rare Disease UK Announcement
 
0Heidi1066on Fri Feb 15, 2013 8:42 pm
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Rare Disease UK Announcement
 
0Heidi1112on Fri Feb 15, 2013 8:41 pm
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Partner Organisation Request - Rare Disease UK
 
0Heidi1315on Thu Jan 17, 2013 4:22 pm
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Admin Announcement
 
0Heidi1284on Fri Jan 11, 2013 10:13 pm
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By Danielle Young, Associate Editor
 
0Heidi1867on Sat Jan 05, 2013 8:09 pm
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IH Awareness Posters/Banners
 
0Heidi3820on Tue Aug 28, 2012 5:58 pm
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Admin Announcement
 
0Heidi1298on Thu Jul 12, 2012 6:17 pm
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NORD
 
1Heidi1362on Fri Jun 29, 2012 2:22 am
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Proceeds go to IHRF
 
0medmisfit1227on Thu Jun 07, 2012 2:25 pm
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Partner Organisation Request
 
2Heidi1675on Thu Feb 16, 2012 4:16 pm
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Rare Disease UK Announcement
 
1Heidi1581on Wed Feb 15, 2012 7:05 pm
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Campaign Partner Information
 
0Heidi1366on Fri Feb 03, 2012 12:39 am
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Admin Announcement
 
0Heidi1275on Tue Jan 24, 2012 6:34 pm
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Information
 
0Heidi1279on Thu Dec 22, 2011 6:51 pm
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Information Video by an IH Sufferer
 
0Heidi1577on Wed Sep 21, 2011 1:03 am
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Partner Organisation
 
1Heidi1511on Wed Jun 29, 2011 8:37 pm
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Fundraising for the Brain and Spine Foundation UK
 
2Heidi1648on Sat Jun 25, 2011 4:51 pm
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Member Fundraising Information
 
0Heidi1745on Thu Mar 31, 2011 6:46 pm
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IH Research
 
0Heidi1566on Sat Mar 13, 2010 1:03 am
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DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
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