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 anyone heard of or had new procdure stent in tranverse sinus vein?

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sherry52
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sherry52


anyone heard of or had new procdure stent in tranverse sinus vein? Empty
PostSubject: anyone heard of or had new procdure stent in tranverse sinus vein?   anyone heard of or had new procdure stent in tranverse sinus vein? I_icon_minitimeMon Nov 25, 2013 12:14 am

I jst found this article and it sound promising, anyone have anything to add?

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Thanks!  I am being considered for a stent, and this sounds so much better to me!
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Wylee
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Wylee


anyone heard of or had new procdure stent in tranverse sinus vein? Empty
PostSubject: Re: anyone heard of or had new procdure stent in tranverse sinus vein?   anyone heard of or had new procdure stent in tranverse sinus vein? I_icon_minitimeMon Nov 25, 2013 3:52 am

Sherry, we haven't had many members report on having stent surgery.  If you do meet the qualifications for getting one, it seems that the stent is far less intrusive than the shunt surgery.  It offers hope for a "cure" rather than to just make things better, as is often the case with a shunt.  
Keep us updated on your progress.
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Sophiasmom
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anyone heard of or had new procdure stent in tranverse sinus vein? Empty
PostSubject: Re: anyone heard of or had new procdure stent in tranverse sinus vein?   anyone heard of or had new procdure stent in tranverse sinus vein? I_icon_minitimeMon Nov 25, 2013 5:45 am

there's someone on DailyStrength PTC forum who had stents, pretty sure it was magnatomamma.  you could message her to ask.  or also ask your question on that forum because there may be others there.
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Akers
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Akers


anyone heard of or had new procdure stent in tranverse sinus vein? Empty
PostSubject: Re: anyone heard of or had new procdure stent in tranverse sinus vein?   anyone heard of or had new procdure stent in tranverse sinus vein? I_icon_minitimeThu Dec 26, 2013 9:21 pm

Hi!

I had this done on November 22nd. I haven't had the chance to get around to doing a write up on my situation yet.. I have been planning on doing that.

My vision test is tomorrow, so I will report more after. I will tell you that I saw the imagery of the before and after of my vein. What a difference! I also no longer have the "pressure" headache.. however, I do still have a headache from the stent placement itself. Apparently having a foreign object in my head may cause pain for a few weeks..

Also, they did a cerebral angiogram to decide if I was a candidate. Basically the pressure inside the vein had to be raised, not just by CSF pressure. It was (a lot) so I chose to do it.
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Wylee
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Wylee


anyone heard of or had new procdure stent in tranverse sinus vein? Empty
PostSubject: Re: anyone heard of or had new procdure stent in tranverse sinus vein?   anyone heard of or had new procdure stent in tranverse sinus vein? I_icon_minitimeThu Dec 26, 2013 11:39 pm

Looking forward to your updates, Akers.  Hope your eye tests go well.  And hopefully those new headaches will settle down shortly.
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Akers
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Akers


anyone heard of or had new procdure stent in tranverse sinus vein? Empty
PostSubject: Re: anyone heard of or had new procdure stent in tranverse sinus vein?   anyone heard of or had new procdure stent in tranverse sinus vein? I_icon_minitimeFri Dec 27, 2013 8:58 pm

I had the eye follow-up field test and check on the pressure. The swelling has greatly reduced, the vision field test showed great improvement. My Optic seemed shocked and surprised and asked me what I had done. I told him about the Stent and he was just amazed. I do not need to see him again for 4 months because the improvement was so phenomenal.
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anyone heard of or had new procdure stent in tranverse sinus vein? Empty
PostSubject: Re: anyone heard of or had new procdure stent in tranverse sinus vein?   anyone heard of or had new procdure stent in tranverse sinus vein? I_icon_minitime

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