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Living with IIH

 
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Pseudotumor Cerebri (PTC) Benign Intracranial Hypertension (BIH) Idiopathic Intracranial Hypertension (IIH) Secondary Intracranial Hypertension (SIH).

You'll all have one and the same condition. It is known mainly as the latter one as there is no known cause, hence the idiopathic. Confusing we know! If you've just been diagnosed you can get together here with others to talk over how you feel about it, and ask the long-term sufferers lots of questions and advice on how to deal with it.

Men & IIH
Introductions and Updates.
Teens & IIH
Talk about the problems you face.
Women & IIH
Introductions and Updates.

Pregnancy & Motherhood with IIH
Share your experience of parenting with IIH.
Your Successes
Every success you have will help someone else and give them hope. So please post.

Group Huddle
Vent or ask a question of other members.
Alternative & Holistic Therapy
Talk about other methods you've tried to help you.
A-Z of Headaches Commonly Experienced with IIH

IH.CONNECT Registry
We hope you’ll consider joining the IIH.Connect registry it
will help you to find IIH Specialists in your Area.

Benefit Resources

Helpful Coping Methods

Useful Booklets and Guides




8055320Life with IIH
Thu Jan 02, 2020 4:04 pm
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DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
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