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Global announcement:

BUY A WRISTBAND OR LAPEL PIN


Merchandise Annoincement 		0Heidi4262Tue Feb 18, 2014 10:18 pm
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Programmable shunt valve affected by exposure to a tablet - IPad 2


Programmable shunts being affected by the magnets in tablet computers. 		1sinister4164815Thu Nov 14, 2013 5:36 pm
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Would you be willing to share your funny and inspirational experiences you've had with IIH?


Admin Announcement 		18Heidi5898Thu Sep 19, 2013 11:55 pm
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IMPORTANT SURVEYS REGARDING THE DIAGNOSIS IIH PROCESS


IMPORTANT SURVEYS 		0Heidi5372Fri Nov 02, 2012 8:42 pm
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Brain and Spine Helpline UK only


Partner Organisation 		0Heidi3735Mon Mar 19, 2012 10:57 pm
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One to One Advice In the Chatbox


Urgent Advice 		1Heidi3391Tue Apr 05, 2011 10:29 pm
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Announcement:

Member Profiles


Admin Request 		0Heidi1099Mon Apr 25, 2016 7:34 pm
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Announcement:

Ongoing Forum Facelift


Administration Announcement 		0Heidi1594Sun Jan 03, 2016 3:06 pm
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Using hashtags and the @ symbol


Admin announcement 		0Heidi1136Mon Feb 02, 2015 6:05 pm
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Announcement:

Neurological patient experience survey UK


Member Participation 		0Heidi1606Mon Aug 04, 2014 10:53 pm
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Announcement:

URGENT RECRUITMENT UK


Announcement 		0Heidi1567Mon Jun 16, 2014 4:21 pm
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Our IIH information booklets launched in England


Announcement 		0Heidi1340Tue Apr 22, 2014 5:23 pm
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IIH Surgery has been Modified


Admin Announcement 		0Heidi1471Thu Jun 28, 2012 1:52 am
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New book on UPRIGHT MRI & CSF Flow Imaging Potential

 		1BananasMom1561Thu May 07, 2015 5:42 pm
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Help us grow the Rare Disease Caucus!


URGENT RDLA Alert 		0Heidi2147Thu May 16, 2013 6:31 pm
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Urgent Patient Experience Required!


Rare Disease UK Partner - RDUK Executive Officer 		0Heidi1362Thu May 16, 2013 6:18 pm
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IH Registry Acetazolamide Use & Pregnancy Study


Latest News from the IHRF 		0Heidi1446Sat Apr 20, 2013 5:29 pm
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Big Lottery Funding


Admin Announcement 		0Heidi1410Wed Apr 10, 2013 1:08 am
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Our Newsletter


Admin Announcement 		0Heidi1359Tue Apr 09, 2013 8:30 pm
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Runners Using Medical Device Therapy Sought


NORD News 		0Heidi1309Wed Mar 27, 2013 9:41 pm
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NEW MEMBERS


FLAGS 		0Heidi1482Mon Mar 11, 2013 4:14 pm
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IMPORTANT What is your rare disease experience?


Partner Organisation Request - Rare Disease UK and Global Genes Project 		0Heidi1532Wed Jan 09, 2013 6:26 pm
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The 2013 EveryLife Art Contest


News from Everylife Foundation 		0Heidi1388Wed Nov 28, 2012 6:44 pm
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Health Departments Publish Summary of Responses to the Consultation on the UK Rare Disease Plan


Rare Disease UK Announcement 		0Heidi1221Fri Nov 16, 2012 5:36 pm
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NORD Press Release: Can Our Society Afford to Provide Treatments for People with Rare Diseases?

 		0Heidi1391Fri Oct 05, 2012 6:24 pm
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News From NORD


Admin Announcement 		0Heidi1493Wed Aug 29, 2012 7:15 pm
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How well do public and major funding bodies in the UK support research into rare diseases?


Rare Disease UK Announcement  		0Heidi1229Thu Aug 23, 2012 7:52 pm
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Site alterations


Admin Announcement 		0Heidi1362Fri Aug 17, 2012 3:35 pm
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Health and Disability Assessment Services Framework UK


Information from the Personal Independence Payment assessment services 		0Heidi1666Thu Aug 02, 2012 8:32 pm
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Newly Wed Mom Battles Idiopathic Intracranial Hypotension and Raises Awarness For Rare Disease


From The Global Genes Project 		0Heidi1284Thu Aug 02, 2012 8:23 pm
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Action Requested: Urge Congress to Avoid Sequestration USA


From the National Alliance for Eye and Vision Research (NAEVR) 		0Heidi1420Tue Jul 17, 2012 10:19 pm
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Donations and Fundraising


Admin Announcement 		0Heidi1375Thu Jul 12, 2012 1:23 am
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FDA Safety and Innovation Act Signed: A Monumental Step Toward The Development of Safe and Effective Treatments for Millions of Americans With Rare Diseases


NORD  		0Heidi1284Tue Jul 10, 2012 12:18 am
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Have you got the drive?


Admin Discussion 		0Heidi1222Thu Jan 12, 2012 7:13 pm
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