Hello k3math and

The blood patch is used when a leak is suspected. Since having your lp, do you feel better when you are laying flat? If so, this could be a sign of low pressure. But to assume that you have a leak is rather odd. Sounds like your doc isn't planning on trying to find the leak, just assuming it is where you had the spinal tap and do a "blind" patch. I don't understand why you and your or don't know what your opening pressure of this most recent lp is, or is that the 20? If the headaches feel the same as before the lp, I would not have the patch done. Did they actually draw off any fluid during the lp? Maybe add fluid to see if that made you feel better?? Lots to consider before having a blind patch. They are not as comfortable as a regular lp is.

I hope you get to feeling better soon. Maybe your meds need to be adjusted??

Hi there! welcome! Sounds like I was writing that! lol.

It really does sound like your meds need to be readjusted. I was on Topamax..Thats not a fun drug. I felt worse on it.

But it sounds to me like you need a giant , and a reassuring smile. I too have not recieved many answers...this forum is super handy for that. I've received more info on here than from my oh so comforting hemorrhoid of a neurologist. ( did I at least make ya laugh a bit?)


**BIG HUGS**

Im here for ya

I'm sorry they've left you completely in the dark..no wonder your frustrated and scared! They use LP to measure pressure, but people w/ IIH usually find some temporary relief once CSF is drained off. It is only temporary, so you could just be experiencing the high pressure headaches again..if they feel exactly the same. Linda's right, a low pressure headache can happen after a spinal tap if fluid continues to leak, so they do a blood patch to seal the leak. If you do get relief when laying down, then it's probably a leak. Your doctor may have ordered the blood patch based solely on your symptoms because it's a typical procedure, but someone should evaluate you prior to the procedure. I assume the person doing the blood patch will do it, but I would definitely ask questions before you let them poke you.

In the meantime, try drinking caffeinated beverages, cold packs for swelling, and lay down as much as possible..the flatter the better! Your high pressure headache can get worse if you push through pain, but low pressure headaches will also get worse because you leak more when upright. Sometimes, they suggest laying flat as many as 7 to 10 days, so try not to worry.

It sounds like you've been on Toprimax for awhile, but if it's new it can also make headaches worse. Unfortunately, everyone responds differently to meds so it's all trial and error. You might try keeping a symptom log..there are examples in the Useful Guides and Print Outs section.

I hope you find some relief soon..hang in there!!!
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Julie