Hello Louise and
Your English is just fine! You did very well describing your problems dealing with IIH.
There are not all that many medical people who know about IIH and how to treat it even here in the US!! It is considered a rare disease.
It sounds like you are under good care now. The "normal" range from a lp for opening pressure is 10 to 20 cm., so yes, 42 is "high". Some docs feel 25 cm should be the maximum for :normal", but actually each person has their own "sweet spot" where the body likes the spinal fluid pressure to be.
Diamox is the usual first drug used to help lower the pressure. Sometimes we have to experiment how much we need to take to get good results. But you are going in the right direction.
Yes, you are not the same person you were before Monday. Now you will be better. Now you will have a better understanding of how your body works, what it needs, and you will have to learn to take care of yourself to get better, and hopefully put the IIh into "remission." Some doctors say that losing weight will help, some say reducing salt and increasing potassium intake. Talk with your doctors and see what they want you to do. I would suggest that you keep a daily log of how you are feeling, what meds you have taken, what symptoms you are dealing with. It will make it easier for your doctors. There are many good forms available here on this website.
I hope that you will start to feel better and be comfortable talking with us. We are a compassionate group here, just wanting to help each other get through this.