A very warm
to the group Ceilia, and I'm so glad that you found us. I'm so sorry you're having a difficult and frustrating time. It doesn't help you mentally or physically if you medical team aren't as productive and efficient when it comes to managing your care and treatment. Hopefully there is information here that can help you, and then to better manage your IIH.
We're not just here to support and give you advice but to listen even when you need to rant. Infact I encourage ranting because it helps release that pent up frustration and anger, and gives a real feeling of release. It helps your pressure, because you aren't bottling it up, but most of all it gives you the chance to say how you feel especially among people who understand exactly what you're going through and how you feel.
We're always here for you, and if you can PM anytime if you aren't sure about something etc.