I was diagnosed in May 2010 and had this condition for 6 months. I went into remission in November 2010 I thought that was the end of it. Unfortunately the condition came back in Nov 2011. The 2nd time was a completely different experience and I really got to know what IIH was all about. I've had a tough year with the condition there's been some very bad days and low days and I've had quite a few LP's( 6 in a year) but over the last number of months everything settled down and I have been feeling great. I have been medication free for 2 months and my paplodimia is gone and my fields are all good. My last LP was last week and my pressure was 17 . I had my appt with my neuro yesterday and he confirmed that I am in remission again . I am hoping it will last longer than the last time but I do know if it comes back I will get through it.
Today is my 1st year wedding anniversary and what great news to have gotten for it. We can also start trying for a baby which I just can't wait

This is the worst condition ever and I wouldn't wish it on anyone. I do hope that everyone else here will get some much needed good news in the near future.

This group has been an amazing support to me and I really want to for helping me get through this.

Congratulations!!! I'm so glad you've found continued relief! I would suggest you check for information on IIH and pregnancy before starting that process. It's completely possible but can affect IIH, so just think it's better to be prepared. IHRF has information on their site (www.ihrfoundation.org), so I'd start there.

It's a very exciting time and I wish you all the best!!! Thanks for the update.
Take care,
Julie

Wonderful update! Thanks so much for sharing and I wish you all the best with your trying to conceive journey, too!

That's great news Good luck with trying for a baby. Fingers crossed for a long and hopefully permanent remission.