When do you think you need support most? Do you need it at certain times as something comes up, or all the time? Is it mainly information you want and need, and if so which information is of most help to you?

We hope you take the time to let us know, as the more we know you need, the more we can help you.

I feel like there is not enough awareness and education about Intracranial Hypertension out there. I don't know about other members, but I hadn't heard of the condition until I had been diagnosed, and even though it was over a year ago, every day I still feel like I am learning new things about the condition.

Nowadays, I am trying to educate my friends about the condition. Some people are scared, it is something they have never heard of and they don't know how to handle it. It would be helpful if there was a guide for explaining your condition to friends and family. Or even a guide which was available that we could just give to our friends and family so that they could educate themselves. This is one stumbling block I always run into.

What does everyone else think? :flower:

I just found out that I have this. So I have loads of questions about it all. I was diagnosed last Wednesday, and I have my treatment plan appt on the 12th. But any input of what others have tried and worked will be much appreciated.