Thank you to everyone for your support.

Hi and to the group. I can see you've been on a bit of a rollercoaster ride. It must be so frustrating when you have done everything you can to lose weight, and to improve on your health with IIH, I know exactly how you feel I've been in a similar position. Have you ever been told what triggered your IIH at all, and could the weight you've gained possibly be down to fluid retention.

I know when I came off Diamox, I felt like I had a lazy bladder, because I hardly seemed to go to the toilet, and I was constantly swollen. In the end I was advised to have my stomach measured every morning and evening for about a week, and the results were that everyday I was gaining 11 cm a day. So I am now on diuretics to keep that from happening. I don't know if it was all the years on diamox, which caused this, but it might be worth talking to your doctor about it possibly being a fluid retention problem. It's definitely worth having it ruled out, as well as having your thyroid checked.

I too have permanent vision loss, and I think it's absolutely fabulous that you have continued to work, and study. I love that you have kept positive and confident throughout all this, and you are an inspiration to others that you can live with IIH, and still have a good life!