I found this book :study: on the internet called;
'Contents under Pressure - One Man's Triumph Over Chiari Syndrome.' by Raphael D'Alonzo.
I bought it from Lulu.com all the procedes go towards Chiari research. Here is the link;
http://www.lulu.com/content/174364
It cost £7.52 but it was about £13 with postage and I got my copy within 2 days! When reading it I had to remember Chiarians are all unique with our symptoms. But its a fantastic book and very inspiring. There is a lot of medical facts in it as well as the story about his 'Chiari journey'. Its well worth the money!!!