I am just wondering if anyone suffers with extremes of swelling and puffiness in their face.. I was diagnosed in May and have posted a few things on here. It has certainly been a lifeline for information. I have recently managed to go back to work although I am finding it very difficult. When I had my initial lumbar puncture in April the change in the swelling in my face was very drastic and throughout the summer my face has remained relatively slim apart from being quite swollen on a morning particularly around my my nose and cheeks. I have recently started to notice that my face is starting to appear more puffy and the headaches and sore head are creeping back. I initially put this down to me going back to work and being tired but am starting to wonder if the pressure is creeping up again. I am currently on 100mg of toprimate a day and have had no major side effects apart from the odd word lapse and have lost a stone and a half . I am now I was wondering if this happens to other people

I have not had swelling that changes, that I noticed, but you may be more sensitive to your body's changes than I am of mine. Have you been keeping a symptoms log? If not, you really should.
Congrats on the weight loss. Even if it doesn't change your IIH symptoms, it's great for your overall health.

I just have really swollen lower legs. apparently 77% of us with IIH have peripheral edema, according to a scientific paper I found.