I Hope you are all as well as can be??? Well I was diagnosed with iih in April 2009, at the age of 29 after years of bein treated for lupus, they then discovered I was having "migraines" which I didn't believe was all it was, so I had my eyes tested at specsavers where papilledema was discovered, then I was sent for an Mri when the Ih was discovered. In just under a year I was given my first lp shunt, which was revised 9 months later when it blocked but since that I struggle to work full time but still manage it for now , I look forward to :?: meeting you all xx

Hi Donna, and welcome to the group! I too am struggling to keep up w/ full time job right now, it's not always easy but tends to ebb and flow for me. I hope you'll find more relief and continue to improve condition as you learn tricks for adapting your environment and taking the edge off your pain. There's a lot of information in this forum, so I would encourage you to browse. I'm really glad you found us and think you'll find a lot of support here!

Take care,
Julie