I've got an Arnold Chiari Malformation and have recently had decompression surgery to hopefully ease some of my symptoms. I've just posted a thread about a book I read which has helped me understand Chiari and its symtoms and how it can affect our lives. Heres the link;
http://ihaveiih.com/book-club-f17/a-great-book-about-chiari-a-must-read-t2.htm
As I get stronger I'll start posting some more about my experiences and some of the things I've learned about Chiari. But if you want to know more you are welcome to ask me any questions, I'm always happy to help!