HI everyone,
Just looking for some information. I had my son when I was 19, when I was half way through my pregnancy I started getting awful headaches and neck pain I just dismissed it could be anything serious because I was pregnant and working 12 hours shifts 6 days a week, however, after my son was born the headache stayed and if anything got worse then my eyes felt like they were going to pop out of my head if that makes any sense.
So I went to see my GP who sent me for a MRI, they found increased fluid around my optic nerve, so I've had a lumberpuncher and found my pressure was at 28, they said that they were sending the fuild off for testing and that id see my doctor soon to talk about the results. I'm just really confused what they are testing for? They said it could be IIH And they have also put me on acetazolmide(if that's how you spell it) also the headache doesn't feel like it's changed in anyway, I had the LP done on a Friday the headache wasn't there on the Saturday, then Sunday it was back, is this normal?
Any information would be really appreciated, feel like I don't know what's going on. After reading up on IIH I think I've scared my self abit so would love to hear from people who have IIH, I've never even heard of it before. Sorry for the long post.