I'm off to New York City for the week.  I found an unbelievably cheap air fare, so I'm making the trip.  My sister lives on Staten Island, so it will be a good chance for us to catch up.  
While I am in NYC, I am going to go to a Neurologist who's area of interest is IIH.  He has written quite a few articles on the subject, so it should be very interesting to get his take on IIH, and my case in particular.  Finding someone who really understands us is such a challenge.  I am keeping my fingers crossed that he may actually help.

I'll let y'all know how it goes. ;)

Thanks for letting us now Linda, I hope it all goes well and can't wait to hear all about it. Fingers crossed for you.

That's great, Linda..good luck!!!

Well, I am back.  
The doctors visits went well.  Both were very encouraging.  The Neurologist wants to see me back in one year, too.

The Neuro-Ophthalmologist told me that I know have:  Visual Vestibular Mismatch Syndrome.  It sure does describe what my symptoms are.  Seems my eyes are giving information that doesn't quite match with what my ear and my legs are saying.  That is creating the conflict, and that makes me dizzy.  He is suggesting following the MAV (Migraine associated vertigo) diet:  no wine, cheese, msg, spicy foods.  He also suggested adding Tai Chi to my list of things to do.

The Neurologist thinks that my Duke Docs may be on to something with the ICP theory.  He wants to learn more about it.  He thinks that my brain will continue to try to rewire itself even if the nerves are badly stripped.  He firmly believes that the brain is constantly trying to get healthy, so it will always keep healing.  Very encouraging report from him.

So, my trip to NYC was a success.  The Docs were wonderful and really understood what I am going through.   
And spending five days with my sister was super.  We ate well, had dinner with two of my cousins and even got to go to the 9/11 memorial.  I am a happy camper.

That's great Linda, I'm so glad it was a good experience!!! I hope the changes provide you with some much needed relief..thanks for the update =]

Hi Wylee,
   If you don't mind me asking what were the names of the doctors you saw ? I am looking for good doctors who specialize in IIH. So far I have seen neurologists but none who specialize in IIH. I stay in NJ so NYU is very near to me. 

Thanks,

Linda what a fantastic update and I am so pleased for you. It is so encouraging to find doctors who you have renewed faith in. Great news

The doctor you saw sounds great, Linda!  Glad you had such a productive visit.