I have had enough now!!!!!!!! doctors refuse to help me!!!!!

Member

:sleep: :ill :quiet:

:afraid: :frustrated Help

I was admitted in the end after my incontinence episode as I started getting even worse low pressure heeadaches. I had an icp bolt done again and it revealed that my pressure was at -19!!!!!!!!!!!!!!! : ( ........... I was still discharged with the same shunt in as they still refuse to move it.

when I went for my follow up apt after my discharge I found out that my surgeon had put on my medical records that my pressure was perfectly normal at +10 wich is a MASSIVE lie.... it never went higher that +2 and that was when iwas layed completely flat. so I have now complained to pals again to see what my options are as im nw being lied to.

I have extreme pain in the back of my head and neck daily and struggle with hand coordination, I also now have a pea sized lump above my lp shunt wich is causing me pain :( so along with allllll my other symtoms its fair to say that my condition is getting worse and theres nothing I can do and no one I can turn to!!!

im too scared to call my ns to see me as I now no that he has lied on my medical records and its obvious tha hes not taking me very serious at all. I just need some help!!!!! im at m wits end and ive had enough now :(

Admin1

No wonder you're at your wits end that's a horrendous experience. If you have been unsuccessful with PALS which is now run by the NHS, whereas before it was separate to the NHS, I think you should read NHS Complaints and exploring some of the other avenues for complaint.

You have a shunt, so losing faith and trust in your Neurosurgeon is not conducive to your future medical care. Failure to treat you effectively at this stage could in fact compromise your choices as to whether or not to contact them with future issues. Explore your options and talk it over with family. Hopefully in the future we will ourselves be able to establish mediational processes for situations like this, for you.

Admin2

I responded to your other post, and am glad to see Heidi addressed this issue because she lives in your area and knows the system better. Definitely follow up with NHS and talk to your family/friends about the next step.

I have had enough now!!!!!!!! doctors refuse to help me!!!!!

I have had enough now!!!!!!!! doctors refuse to help me!!!!!

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