I have been suffering from IIH from Jan 2012. I had LP with 32 in Feb 2012. Right away started with diamox 1000mg till March 2012. Had pulsatile sound on and off in my right ear after taking diamox. Then my NO reduced the dosage to 750 mg till June 2012. Meanwhile lost 10 pounds and was doing very well. I weigh 138 pounds right now. NO reduced the dosage to 500 mg till Sep 2012. On checking the optic nerves and tests, she asked to stop the medication. As a process of weaning off I tapered the dosage to 250 mg for 3 weeks and then stopped completely. Immediately after stopping had dizzy spells, heavy eyes and more pulsatile sound. After a week of struggle, with NOs instruction started back on diamox 375 mg but still feel dizzy and more pulsatile sound even after 5 days Vision has got better with little heaviness and pain. Noticed my temperature has dropped to 96 and bp 107/62. Is something there to worry about? is the symptoms related to withdrawal or iih has flared up? My NO is very rude and says I dont take care of dizziness.:(
Wanted to stop the medication as me and my husband planned to start family in few months. I work in computers and feel so bad to be called as a sick person :(..
Will I be back to normal, scared of LP again.

P.S. Have Polycystic ovary Syndrome.

I think that the best thing you can do is contact your Neurologist, especially as you are experiencing these problems. I know LP's are not pleasant but it could be that you may need one, and also be put back onto the Diamox.