Heidi
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 |  Subject: The Unlocking Lifesaving Treatments for Rare diseases Act of 2012 USA  Fri Feb 03, 2012 12:39 am | |
| The Unlocking Lifesaving Treatments for Rare diseases Act of 2012 USA - Quote :
- U.S. Representatives Cliff Stearns (R-FL) and Ed Towns (D-NY), two senior members of the House Energy and Commerce Committee, introduced bipartisan legislation to help spur the development of treatments for very rare diseases.
The Unlocking Lifesaving Treatments for Rare diseases Act of 2012, or ULTRA, H.R. 3737, will improve access to the FDA's Accelerated Approval process for very rare diseases, provide a more predictable regulatory process, bring down development costs, and spur investment in the development of treatments. Additionally, ULTRA requires the FDA to use the best science available, ensuring treatments are safe and effective and reach patients sooner.
With the introduction of ULTRA, the EveryLife Foundation will begin to build Congressional support for this important legislation. Most importantly, we thank Representatives Stearns and Towns for their leadership and support of the rare disease community.www.curetheprocess.org Click the link to give your support |
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