Subject: Global Genes Toolkits Fri Jan 16, 2015 11:44 pm
Global Genes wrote:
RARE Toolkits provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients. RARE Toolkits are being created in collaboration with key rare disease stakeholders that have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices.
Attachments
GG_toolkit_3final_print.pdf
Bringing Rare Disease to Capitol Hill: Advocating for Your Cause
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GG_toolkit_eight_20140626_web.pdf
Access to Unapproved Medicine: Is This An Option for Me? (USA)
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GG_toolkit_eleven_20141021_web.pdf
Searching for Answers: Contacting Biopharmaceutical C ompanies Effectively
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GG_toolkit_nine_20140725_web.pdf
Gaining Independence as a Young Adult with Rare Disease
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GG_toolkit_six_rev3.pdf
Becoming an Empowered Patient
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DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Subject: Global Genes Toolkits 
Fri Jan 16, 2015 11:44 pm
GG_toolkit_3final_print.pdf 
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