Transverse Sinus StentJust getting this out there, as it seems the Transverse Sinus Stent is very uncommon still. If this is the wrong area to put this, I apologize. I just wanted to get it out and put it somewhere for others.
I've had PTC/IIH about two and a half years, one and a half year with treatment and tests.
As far as my meds and LP process has gone..
Original OP of 31 (no meds)
Bit later…
500mg Diamox – OP: 35
1000mg Diamox – OP: 34
2000mg Diamox – OP: 32
3000mg Diamox – OP: 31
After going through the MRI, MRV, and all tests, I was sent on to the Neurosurgeon to discuss shunt placement. I also stopped taking Diamox and felt much better. I did not use any other form of pain management, just general Ibuprofen. I did try Topamax, but I felt no relief of any kind; so, I stopped taking them. I had a vision field test done, and then another 3 months later. The 2
nd test showed severe worsening in both the VF test and the swelling on the nerves. So it was important for me to make a decision on the next step.
Looking at my MRV, the 1
st Neuro decided to send me to his colleague to see if I would be a candidate for a Stent. He explained that putting a shunt in to him is like a carpenter putting in a nail, so falling back to that would be no problem.
The 2
nd Neuro (most amazing doctor in the world I might add..) looked over my MRV and then after talking with me about the idea of a stent and answering any questions I had, scheduled me for a cerebral angiogram. I was awake for this, and went home the same day. Results showed increased pressure (45 or 50, or so) in my vein. This makes me a candidate for a Stent.
Transverse Sinus StentThey were able to schedule me about 1 week after my initial cerebral angiogram. They went in again the same way (I was asleep this time) and they used a catheter to guide the stent up into my vein. I actually had thinning and issues with both sides, so he chose the worse of the two. After a few hours I was in recovery and then I had to spend one night in ICU. The stent is MRI safe.
The next day, my pressure headache was gone. I had pain from the stent itself, it was (I believe) 40mm x 5mm in length and width. I had some pain meds, but just for about 2 days. I also had to start taking Plavix (75mg) and Aspirin (325 mg), and will be on that for 3 months. After I am cleared, I will have to take a baby Aspirin (81 mg) daily for life. Not a bad deal, in my opinion.
One month and a few days later, I still have pain from the stent, however I was told my stent is a bit on the large size, and also that 40 or 50, or so, was on the higher side of any pressure he had seen, so it is expected and not of concern. The headache from the stent should dwindle in a few more weeks. He did ok me to take a Motrin. There can be issues with NSAIDs and Plavix, so please don’t take my experience as it being ok to take these together without a doctor’s advice. Tylenol does not take away the pain for me, but Ibuprofen does... so I take it only when really needed.
I had the eye follow-up field test and check on the pressure. The swelling has greatly reduced, the vision field test showed great improvement. My Optic seemed shocked and surprised and asked me what I had done. I told him about the Stent and he was just amazed. I do not need to see him again for 4 months because the improvement was so phenomenal.
As this is a condensed version of a 2.5 year journey with many doctor visits and procedures, if you have questions, I may be able to better a detailed explanation of the part of the journey you are curious about – so please just ask.