It can take a long time to get a diagnosis for IIH, but when you finally do, it can be quite a shock. Then of course you won't know much about what it actually is, or indeed know where or who to turn to. That is until you found your way here, where you can at last learn more about it from people who also understand and know exactly how you feel.

We also want to help provide you with coping skills to help you live with IIH, and by doing so be able to maintain your life to it's fullest. So ask as many questions as you feel you need to, and don't be afraid to express how you feel, this is the purpose of i have iih.