Good evening all
I am Tracey and I am in the UK. I was diagnosed on Monday after a week's stay in the hospital. I am sure many won't be surprised this hasn't been a quick journey, in fact 3 years since it first came up as possible.
My MRI apparently was enough to diagnose, I have in the past had an LP of 25 whilst on Diamox. But was dismissed. They are going to rerun the LP but they have already diagnosed me.
My symptoms are:
Pappiledema - left eye is mild, right eye is very swollen, with swollen optic disc veins which are grossly swollen and twisty.
Vision loss - both eyes worse in the right.
Headache
Pulsatile tinnitus
Tinnitus
Nausea
Dizziness
High blood pressure (175/118)
Random symptoms to discuss with my neurologist are:
Detached feeling
Pressure in the ears
Swollen fingers
I wondered if anyone else has those random symptoms.
Thank you for having me