Beth, that is great news! I'm so glad you were able to connect w/ someone that understands IIH. As far as FMLA, you might want to look into HIPPA insurance options..just in case. Some employers will work w/ you as long as they know you're making progress, but others will fire you the day your FMLA runs out. A HIPPA policy is limited, but a lot more affordable..then you can transfer at any time. You should also be offered a COBRA policy, but they're pretty expensive b/c they know you have limited options. Most importantly, don't let your coverage lapse! You could be without insurance for a year or more due to a pre-existing condition, so it's important to stay covered. You can apply for Social Security Disability or Medicaid, if needed.
Good luck!!!!
Julie