Hi all i just wanted to introduce myself, i'm Sally i'm 40yrs old with 5 sons and a daughter, and am married
. i first got diagnosed with IIH last sept afterl months of being ill and loads of tests, i had never heard of this illness before so was completley in the dark to what to expect from now on,
i'm currently taking diamox (which has given me real bad pins and needles mainly in the feet) which my neurologist has just doubled for me because my headaches were so bad, had a LP last aug loads scans etc, i also get very tired and am currently loosing weight as i was very overweight i have lost 2st since aug as my gp said this might help the condition long way to go yet though,
my opthamologist is great as well as i have pap in one eye from which i began to lose the sight in but thankfully it seems to have improved alot,
i find the hardest thing is that because you cant physically see anything wrong with me people find it hard to accept that i'm ill at all. so feel like i'm alone coping with this as i've stopped telling friends family how i'm feeling anymore. doesn't help that noone heard of this illness either i find lol,
anyway look forward to chatting with everyone its given me hope just finding this site and others just like me
hugs to all x