Hi I'm Sabine, I'm 18 year old.
I was diagnosed IIH when I was about 12 or so.
Before that I had to walk 3 more years with that headache! That was really hard, because the doctors didn't know what 'my disease' was..
When I was 12 they finally knew it and I got a shunt. I worked very well, but when you're growing the shunt will be to tight. So now I again have that headaches and already 3 lumbal punctions :( Before I got the shunt I already got 15 of them.
Friday I'll visit the doctor and then we'll talk about the shunt if it's gonna be replaced or so.
That was about me :P Sorry for my English, I'm Dutch so sometimes it's a little bit hard for me.