Welcome to the forum! And, yes, unfortunately it can take even longer than a few months for people to get treatment. It is a frustrating and exhausting process, but it does seem like they're making appropriate referrals and doing all the right tests. I am surprised that the ophthalmologist or neurologist didn't at least start you on medications to reduce the fluid build up and help with pressure. Maybe they wanted the LP first so it would be more accurate for diagnosis, but I'm sorry you're suffering!
Your symptoms do seem fairly typical and I also have the numbness/tingling. Usually it's in my face, but I get it in my hands and other places depending on how bad my headache gets. There are some things you can do at home to help relieve some of the pressure and discomfort. I find that laying on my side and propping myself up with pillows at 45-60 degree angle helps. It's a bit of trial and error to find your sweet spot, but it does reduce the pressure. I also have an eye pillow. I had to play with the content and weight, but it's made of satin so the coolness and little bit of weight provides much needed relief to my sore eyes. A cool, damp cloth can also help. I use a heating pad at the base of my neck, but others prefer cold and mentioned placing a soda can there. I know caffeine is supposed to be used for low pressure, but you also may try it if you feel a bad headache coming on. Stress and muscle tension can bring on other types of headaches, so it can at least take the edge off some times if used sparingly. Also, try to avoid processed foods because they cause inflammation and contribute to pain. I hope you find something that helps until you can get the LP. Luckily, you should get fairly immediate relief once they remove some of the spinal fluid. It only lasts a day or two, but it helps! Plus, they'll hopefully start a medication at that point to help keep your fluid levels down.
Feel free to check out the site and let us know if you have any further questions or concerns. We'll do our best to help you through it!
Take care,
Julie