Hi everyone! 

(I'm reposting this because I think the other topic I posted in is a little abandoned. What's to expect when we're only 1 in 100.000? ;)

I think I haven't posted here since I was freaking out about my VP shunt [You must be registered and logged in to see this image.] . I'm sorry I haven't been a good member :(. I had my vp fitted in march, have had 2 revisions since (27 june & 27 juli ) . I am currently on a holiday because I had been in the hospital all month and really needed a break, I was so exhausted! (after the last surgery I had a roommate from hell who kept me up all night and had visitors all day from 7am!). 
Anyway, my shunt still isn't draining and we're starting to come to the conclusion that it's not working because my ventricles are too small, which means it's not going to work either [You must be registered and logged in to see this image.] .  So I'm probably going to have a LP shunt implanted sometime next week. The doctors at my hospital say they have rarely done one before because they consider it to be an ancient, inferior method, but it took me a long time to find doctors who even took me seriously so I'm sticking with them:). I haven't had this one before so I'm scared and have a few questions, I'd feel better having a better idea what to expect, so, I thought I'd ask you guys! Here it goes:


- How long was your hospital stay? (I know it varies, but I'd still like to know;)

- Were you allowed to lie on your back or only the side the shunt wasn't on?

- Did you have two incisions (back and belly), or also one on your hip?

- How soon after the surgery could you stand up and walk a bit?
(I'm dreading not being able to use the bathroom after surgery, because for some reason I can't use a chamberpot and I hate the idea of a catheter.)

- How soon did it start working (if it did)? Immediately, or after a few days, weeks, months?


Thank you so much for taking the time to read (and hopefully answer), it really makes a difference.
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I'm sorry you're not getting a lot of responses. We've been getting a lot of views and still have new members joining, but not many people post anymore. I know the founder has had some health concerns and isn't currently active, but the Admin team is checking and responding.

I hope this catches the attention of someone new, but let us know if you have any further questions or concerns.

Take care!