HomeLatest imagesRegisterLog inFollow us on facebookFollow us on twitterFollow us on youtubeFollow us on LinkedinFollow us on PintrestContact usFeedback


Share  | 
 

 I have had enough now!!!!!!!! doctors refuse to help me!!!!!

View previous topic View next topic Go down 
AuthorMessage
angelisse-sophia
Member
Member
angelisse-sophia


I have had enough now!!!!!!!! doctors refuse to help me!!!!! Empty
PostSubject: I have had enough now!!!!!!!! doctors refuse to help me!!!!!   I have had enough now!!!!!!!! doctors refuse to help me!!!!! I_icon_minitimeMon Mar 03, 2014 2:03 pm

Help  :sleep:  :ill  :quiet:  😪  censored  :afraid:  :frustrated  Help 
I was admitted in the end after my incontinence episode as I started getting even worse low pressure heeadaches. I had an icp bolt done again and it revealed that my pressure was at -19!!!!!!!!!!!!!!!  :  ( ........... I was still discharged with the same shunt in as they still refuse to move it.
 
when I went for my follow up apt after my discharge I found out that my surgeon had put on my medical records that my pressure was perfectly normal at +10 wich is a MASSIVE lie.... it never went higher that +2 and that was when iwas layed completely flat. so I have now complained to pals again to see what my options are as im nw being lied to.
 
I have extreme pain in the back of my head and neck daily and struggle with hand coordination, I also now have a pea sized lump above my lp shunt wich is causing me pain :( so along with allllll my other symtoms its fair to say that my condition is getting worse and theres nothing I can do and no one I can turn to!!!
 
im too scared to call my ns to see me as I now no that he has lied on my medical records and its obvious tha hes not taking me very serious at all. I just need some help!!!!! im at m wits end and ive had enough now :(
Back to top Go down
Heidi
Admin1
Admin1
Heidi


I have had enough now!!!!!!!! doctors refuse to help me!!!!! Empty
PostSubject: Re: I have had enough now!!!!!!!! doctors refuse to help me!!!!!   I have had enough now!!!!!!!! doctors refuse to help me!!!!! I_icon_minitimeMon Mar 03, 2014 6:28 pm

No wonder you're at your wits end that's a horrendous experience. If you have been unsuccessful with PALS which is now run by the NHS, whereas before it was separate to the NHS, I think you should read NHS Complaints and exploring some of the other avenues for complaint.

You have a shunt, so losing faith and trust in your Neurosurgeon is not conducive to your future medical care. Failure to treat you effectively at this stage could in fact compromise your choices as to whether or not to contact them with future issues. Explore your options and talk it over with family. Hopefully in the future we will ourselves be able to establish mediational processes for situations like this, for you.
Back to top Go down
http://www.ihaveiih.com
medmisfit
Admin2
Admin2
medmisfit


I have had enough now!!!!!!!! doctors refuse to help me!!!!! Empty
PostSubject: Re: I have had enough now!!!!!!!! doctors refuse to help me!!!!!   I have had enough now!!!!!!!! doctors refuse to help me!!!!! I_icon_minitimeThu Mar 06, 2014 4:05 pm

I responded to your other post, and am glad to see Heidi addressed this issue because she lives in your area and knows the system better. Definitely follow up with NHS and talk to your family/friends about the next step.
Back to top Go down
Sponsored content




I have had enough now!!!!!!!! doctors refuse to help me!!!!! Empty
PostSubject: Re: I have had enough now!!!!!!!! doctors refuse to help me!!!!!   I have had enough now!!!!!!!! doctors refuse to help me!!!!! I_icon_minitime

Back to top Go down
 

I have had enough now!!!!!!!! doctors refuse to help me!!!!!

View previous topic View next topic Back to top 
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
www.ihaveiih.com :: Living with IIH ::   :: Group Huddle-
Jump to:  
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Protected by Copyscape Web Copyright Protection Software
Top Disability Websites
Free forum | ©phpBB | Free forum support | Report an abuse | Forumotion.com