Welcome Meg and I am sorry your daughter has been diagnosed with IIH, especially at a time in her life that is already difficult, the terrible teens. We have lots of information on here and you might also fing the IH Research Foundation website helpful too. We do have parents who have children with IIH, and you may like to contact our Admin Karla Richardson who has a daughter about your daughters age, who also has IIH. You can email her or PM her through her profile.