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 Mum of 13yo teen recently dx IIH

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PostSubject: Mum of 13yo teen recently dx IIH   Mon Aug 12, 2013 1:38 pm

Greetings from wintry Australia.

My 13yo daughter was diagnosed in June with IIH and I am reading widely as we go along this new path in our lives.
There isn't a lot of info out there apart from these support groups-which have been great! For something fairly rare-its great to be able to locate the other families who are also living this life.

Best wishes to you all,
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PostSubject: Re: Mum of 13yo teen recently dx IIH   Mon Aug 12, 2013 4:46 pm

Welcome Meg and I am sorry your daughter has been diagnosed with IIH, especially at a time in her life that is already difficult, the terrible teens. We have lots of information on here and you might also fing the IH Research Foundation website helpful too. We do have parents who have children with IIH, and you may like to contact our Admin Karla Richardson who has a daughter about your daughters age, who also has IIH. You can email her or PM her through her profile.
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Mum of 13yo teen recently dx IIH

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www.ihaveiih.com :: Living with IIH ::   :: Teens and IIH 16-19-
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DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
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