We need your help in contacting politicians in each of the UK’s home nations to raise awareness of rare diseases and to encourage them to attend our parliamentary events. We are using Rare Disease Day as an opportunity to urge politicians to attend our parliamentary receptions and to get in touch with the Secretary of State for Health (or the Health Ministers in Scotland, Wales and Northern Ireland) to raise awareness for the rare disease plan and ask how it will be implemented.
As their local constituent, you have the most influence over your local politician, so we would be very grateful if you could adapt template letters provided here and email or post them to your local politician. There is room in the letter to inform them about your condition or interest area, so please do take the opportunity.
We would be interested in hearing if you get a response from your politician as this helps us to identify who has an interest in rare diseases which aids us in our political campaigning work.