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 Events and activities to mark Rare Disease Day UK 2013

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PostSubject: Events and activities to mark Rare Disease Day UK 2013   Fri Feb 15, 2013 8:41 pm

Please see below the events and activities taking place to mark Rare Disease Day. Rare Disease UK will be represented at many of these events.

There are still places for our receptions marking Rare Disease Day at the Scottish Parliament and the Welsh Assembly!

At the Scottish Parliament and Welsh Assembly receptions we will be launching two new reports ‘Experiences of Rare Diseases: Patients and Families in Wales’ and ‘Experiences of Rare Diseases: Patients and Families in Scotland’ which investigate the experience of patients and families living with a rare condition in these countries.
The receptions are being held on the following days and you can register here:

Welsh Assembly, Cardiff – Wednesday 20th February, 6pm – 8pm
Scottish Parliament, Edinburgh – Tuesday 26th February, 6.30pm – 8.30pm
Rare Disease Day Conference – Dublin

The first ever all Ireland meeting of patients’ organisations, science and industry to mark International Rare Disease Day and the Irish Presidency of the Council of the European Union will take place in Dublin on 28th February.
9am to 3pm – Wood Quay Venue, Civic Offices Dublin 2
There is no charge to attend this conference but registration is required. Register by email to info@ipposi.ie or telephone 353 (1) 407 1629.
For more information please visit: http://www.nirdp.org.uk/

Rare Disease Day at Royal Holloway University

Following last year’s successful event, Royal Holloway University, London, will be holding another awareness raising event on Rare Disease Day. All the information about the event, including exhibiting opportunities is available on the following website: http://www.rhul.ac.uk/biologicalsciences/rdd/rarediseaseday.aspx
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