HomeLatest imagesRegisterLog inFollow us on facebookFollow us on twitterFollow us on youtubeFollow us on LinkedinFollow us on PintrestContact usFeedback


Share  | 
 

 IIH-Hydrocephalus

View previous topic View next topic Go down 
AuthorMessage
DMajorly
Member
Member
DMajorly


IIH-Hydrocephalus Empty
PostSubject: IIH-Hydrocephalus   IIH-Hydrocephalus I_icon_minitimeTue Apr 23, 2013 3:04 pm

I have always heard the term IIH from my doctors but im confused.. I was at my pre op yesterday for my shunt, and my surgeons diagnosis is Hydrocephaus... my only thought is hes blaming it on my ventricular system? I had a stent in Nov of 2012 that has made no difference other then i can feel it throbbing now too at times. Im just like WHAH what!?
Also im worried that I will feel the shunt like i feel my stent. Eek I know Ive heard good and bad about the shunt and may have even asked this before but can you feel it always or does it finally feel like a part of you?
eeek my heads been hurting non stop, i havent been to work i really want this all to be over!
Back to top Go down
Heidi
Admin1
Admin1
Heidi


IIH-Hydrocephalus Empty
PostSubject: Re: IIH-Hydrocephalus   IIH-Hydrocephalus I_icon_minitimeTue Apr 23, 2013 3:18 pm

As the owner of a VP shunt, I can assure you it just becomes part of your body, and you're only aware of it when you're washing you hair and can feel the valve and bulb. It may feel a little different on the side where the surgery has been because they will cut through nerves, but nothing detrimental.

I asked all the same things as you when I was having my first shunt too, I just wish there had been someone to answer them who had had one. If you have anymore questions please keep asking. Let us know the date you're having your surgery so we can all support you fully and root for you. hug
Back to top Go down
http://www.ihaveiih.com
Sophiasmom
Admin2
Admin2
Sophiasmom


IIH-Hydrocephalus Empty
PostSubject: Re: IIH-Hydrocephalus   IIH-Hydrocephalus I_icon_minitimeTue Apr 23, 2013 5:47 pm

hydrocephalus is when there is increased pressure in the ventricles pushing OUT at the brain. it is caused by a blockage within the ventricular system.
IIH is when there is increased pressure all around the outside of the brain, pushing IN. it is generally caused by poor CSF drainage at the arachnoid granulations, due to an abnormal pressure gradient from CSF to the venous system. what causes that may be different in different people, and not always discernable.
Back to top Go down
Wylee
Member
Member
Wylee


IIH-Hydrocephalus Empty
PostSubject: Re: IIH-Hydrocephalus   IIH-Hydrocephalus I_icon_minitimeTue Apr 23, 2013 6:30 pm

Thanks for the explanation, Deb. I have wondered that myself.
How do they determine which way the problem is? In my case, the docs have called in PTC as well as Hydroc.
Back to top Go down
Sophiasmom
Admin2
Admin2
Sophiasmom


IIH-Hydrocephalus Empty
PostSubject: Re: IIH-Hydrocephalus   IIH-Hydrocephalus I_icon_minitimeWed Apr 24, 2013 12:55 am

I would think it's hydro when the ventricles are enlarged. usually ventricles are small in IIH. there might be other ways that I don't know about. I know I had a CSF flow velocity done on my MRIs, and maybe they would see something in particular on that with hydro vs. IIH.
Back to top Go down
MarkyMark
Member
Member
MarkyMark


IIH-Hydrocephalus Empty
PostSubject: Re: IIH-Hydrocephalus   IIH-Hydrocephalus I_icon_minitimeWed Apr 24, 2013 4:41 pm

I have a friend (actually we shared an office together about 15 years ago) who was diagnosed with hydrocephalus. His issue was that the ventricles were increasing in size at an alarming rate. He eventually had a VP shunt. So I think you are correct, Deb, in your descriptions of IH vs hydrocephalus.
Back to top Go down
Sponsored content




IIH-Hydrocephalus Empty
PostSubject: Re: IIH-Hydrocephalus   IIH-Hydrocephalus I_icon_minitime

Back to top Go down
 

IIH-Hydrocephalus

View previous topic View next topic Back to top 

 Similar topics

+
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
www.ihaveiih.com :: Living with IIH ::   :: Group Huddle-
Jump to:  
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Protected by Copyscape Web Copyright Protection Software
Top Disability Websites
Free forum hosting | ©phpBB | Free forum support | Report an abuse | Forumotion.com